Progress, slowly.

28 03 2013

I haven’t blogged in forever.  Sorry.  Work crushed me, and then I spent a week in California working a big jiu jitsu tournament.  

I’m feeling very resistant about blogging lately.  I have lots of stuff going on in my heart, mind, relationships and so on… but just no real desire to share it.  Forgive me if that sounds weird (I mean, what’s the point of having a blog then?)  But it’s just too much, too personal, and I’m dealing with it inside my head.

The bottom line is, I start lupron tomorrow, and FET is scheduled in NY for April 23.  I’ll be on neupogen and hcG boosters (as well as all the usual suspects– prednisone, lovenox, gluten free, etc.)  I think the hcG boosters make pregnancy testing useless, so I am guessing I have to wait for an ultrasound to see if it/they “took.”

Hope you’re well 🙂





Finally, we start the FET cycle.

10 03 2013

Today is cycle day 1.  I should be getting my calendar for meds and whatnot in the next few days.  I start BCP today and I hope I don’t have a MASSIVE battle ahead with my insurance company to cover my meds.  They’re prescribed for my endometriosis, after all, which is a covered condition.  C’mon now.

I met with a hematologist, twice.  No coagulation problems, homozygous for the c667 MTHFR mutation, but my homocysteine levels are normal.  Everything normal, in other words, and even the C reactive protein levels (a marker for inflammation) are low.  However I did get a diagnosis of neutropenia so I’m hoping he’ll write me a script for neupogen.  That.would.be.sweet.

My immunologist called me back and has been great- she’s trying to chat with one of my nurses at Dr. Braverman’s and hopefully I can get some IVIg through her, though my igG numbers were just fine.

I’m meeting with an endocrinologist (who specializes in thyroid issues and subfertility) next Monday the 18th.  I think I’m mildly hypothyroid.  Here’s a list of symptoms to be concerned about from http://www.StoptheThyroidMadness.com.  I’ll make the ones I have in red.

  • Less stamina than others
  • Less energy than others
  • Long recovery period after any activity
  • Inability to hold children for very long
  • Arms feeling like dead weights after activity
  • Chronic Low Grade Depression
  • Suicidal Thoughts
  • Often feeling cold
  • Cold hands and feet
  • High or rising cholesterol
  • Heart disease
  • Palpitations
  • Fibrillations
  • Plaque buildup
  • Bizarre and Debilitating reaction to exercise
  • Hard stools
  • Constipation
  • Candida
  • No eyebrows or thinning outer eyebrows
  • Dry Hair
  • Hair Loss
  • White hairs growing in
  • No hair growth, breaks faster than it grows
  • Dry cracking skin
  • Nodding off easily
  • Requires naps in the afternoon
  • Sleep Apnea (which can also be associated with low cortisol)
  • Air Hunger (feeling like you can’t get enough air)
  • Inability to concentrate or read long periods of time
  • Forgetfulness
  • Foggy thinking
  • Inability to lose weight
  • Always gaining weight
  • Weight loss (a small minority experience this)
  • Inability to function in a relationship with anyone
  • NO sex drive
  • Failure to ovulate and/or constant bleeding (see Rainbow’s story)
  • Moody periods
  • PMS
  • Inability to get pregnant; miscarriages
  • Excruciating pain during period
  • Nausea
  • Swelling/edema/puffiness
  • Aching bones/muscles
  • Osteoporosis
  • Bumps on legs
  • Acne on face and in hair
  • Breakout on chest and arms
  • Hives
  • Exhaustion in every dimension–physical, mental, spiritual, emotional
  • Inability to work full-time
  • Inability to stand on feet for long periods
  • Complete lack of motivation
  • Slowing to a snail’s pace when walking up slight grade
  • Extremely crabby, irritable, intolerant of others
  • Handwriting nearly illegible
  • Internal itching of ears
  • Broken/peeling fingernails
  • Dry skin or snake skin
  • Major anxiety/worry
  • Ringing in ears
  • Lactose Intolerance
  • Inability to eat in the mornings
  • Joint pain
  • Carpal tunnel symptoms
  • No Appetite
  • Fluid retention to the point of Congestive Heart Failure
  • Swollen legs that prevented walking
  • Blood Pressure problems
  • Varicose Veins
  • Dizziness from fluid on the inner ear
  • Low body temperature
  • Raised temperature
  • Tightness in throat; sore throat
  • Swollen lymph glands
  • Allergies (which can also be a result of low cortisol–common with hypothyroid patients)
  • Headaches and Migraines
  • Sore feet (plantar fascitis); painful soles of feet
  • now how do I put this one politely….a cold bum, butt, derriere, fanny, gluteus maximus, haunches, hindquarters, posterior, rear, and/or cheeks. Yup, really exists.
  • colitis
  • irritable bowel syndrome
  • painful bladder
  • Extreme hunger, especially at nighttime

Interesting, no?  We’ll see.  Anyway… if my calculations are right, absent a calendar, I think I’ll be FET-ing in late April.  🙂








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