Dang cytokines etc are even higher now. Grumble grumble, freak out freak out.

15 11 2012

Dammit. Braverman just emailed me and then called me to chat… my last immune retest panel just came back and my cytokines are even HIGHER now than first and second test! They’re 51.9/37! And NKa are higher too.

So he said a few things: 1, after we discussed the supplements I’m on, he says there’s no issue with possibly being on ones that aggravate cytokines (he says greens/spirulina are the current consideration for that.) I’m on myoinositol, melatonin, metformin, L arginine, vitamins A C D E and fish oil, and MaxiFlavone. All good he says. Second, we discussed whether it’s a lab issue. The Y forum has a current thread about whether San Jose gets lower cytokine levels than RFU. Dr B’s thought on the matter is RFU gets more accurate results and he doesn’t think it’s a lab issue. Instead, he thinks there’s something innate in me, it’s not a diet issue or a supplement issue, and thus, we’ll need to make certain therapies are in place before we consider any FETs. (I already knew this.)

So… we have time to sort it out… he said one option is neupogen plus prednisone. The other is IVIg and humira. I’m fine with both frankly. He said neupogen alone isn’t really showing a decrease in cytokines in the immunological literature, but it is showing that in the reproductive literature. He also says neupogen plus prednisone has better results on that front. But “we have time,” he kept repeating, and “it will get resolved, we’re not putting any embryos back in you unless we know they’re safe.”

And then? the doozy… “Have you considered a surrogate? Not saying that is necessary– but if you wanted to avoid being on all the meds possibly necessary to bring down your inflammation…”

We chatted about that for a moment, but really the bottom line is no. I am 100% in favor of anything other people want to do… but us, we, I just couldn’t see paying $60-70k for someone else to carry the baby. He said well, keep your ears open, you might meet someone or find a family member who is willing. Yeah, I will keep my ears open, but really… I doubt it. We don’t have sisters, and none of my best friends live even in the same state. And they’re all my age. So who wants to get pregnant for free at 40+?? not happening.

AND I want to carry the damn thing myself. After all this, I WANT MORNING SICKNESS THANK YOU.

that is all.

Advertisements

Actions

Information

One response

19 11 2012
taylor

Hey lady, when is your next ER?

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s




ourlastembryo's Blog

Endometriosis & Infertility. The road to overcoming invisible illnesses

The Jiu-Jitsu Vortex

Brazilian Jiu-Jitsu: More Gravitational Pull than a Black Hole

Everyday Mom Style

Fashion and Style Advice for Everyday Moms

WishfulBabybump

My IF Journey to MOTHERHOOD!

ReproRenegade

one woman's quest to repossess her fertility

Conceivable Solutions

Reproductive Immunology and Infertility Consultant

Bring on the Babies...

Adventures in Infertility and Reproductive Immunology

conceptionchronicles

Read my journey through infertility over the last 8 years...

2 Lovebirds + 1 More, Please?

All About IVF with PGS and Reproductive Immunology

My Preconceived Life

trying to add another person to the planet

The Joy Of an Embryo-Sitter

Adventures in Infertility and Reproductive Immunology

Hyperbole and a Half

Adventures in Infertility and Reproductive Immunology

Two Good Eggs

Two cracked eggs find the sunnyside (and funny side) of trying to conceive

INFERTILIT-HE

Adventures in Infertility and Reproductive Immunology

hopefulandhungry

The road to conceiving a baby....enjoying food and life along the way

Scrambled Eggs

using science to make a baby

Journey To the Finish Line

PR's, toddlers, hopes and dreams; I'm always running after something

The Knocked-Up Hopeful

Trials In Getting Knocked-Up

Kit and Kabooble

A travelogue through the world of breast cancer

Baby Steps to Balance

Finding a healthy balance on the road to baby

Idiotic Infertility

My Diminished Ovaries and Me

These Rotten Eggs

An Infertility Journey

Immotileturtle's Blog

Just another infertile rocking in a fertile world

Why Can't We Do This The Easy Way?

Our journey through the boggy waters of surrogacy

Thought Provoking Moments

He & Me Plus 3: Life With Triplets Un-wrapped

ladyblogalot.com

Okay, so, it’s not like I think everything I say and do is so damn awesome that everyone should know about it. In a blog. It’s just that as if being blind, and a vegetarian, with anxiety/OCD, and having the ability to accidentally break almost anything, and not liking chocolate, would be enough. But no. I also have to have IVF. Could I be any more minority? So it’s like god is playing one big joke on me… and I am not going down without a fight. In fact, God, I’m going to tell your mum on you. Well I would if my knowledge of religion was good enough for me to figure out who your mum is. Eve? Is it Eve? Well, Eve, this is what your son has been up to, and God, I just got you grounded pretty much forever. In your face, God. Ha.

The Quest to be a Mom

Adventures in Infertility and Reproductive Immunology

%d bloggers like this: